Alone, overwhelmed, uncertain and unable to get a referral from Tyler’s reluctant pediatrician, I was determined to get Tyler screened for autism. I was told it would be a six month wait for a screening. What a frustrating journey! So many doctor’s visits with no diagnosis, no solutions, no help. I just wanted an answer, an explanation for Tyler’s struggles.
The eventual diagnosis of autism spectrum disorder brought us both peace. Tyler was relieved to know he wasn’t “weird”. There were many other kids like him.
Armed with a diagnosis, empowered with a new sense of direction, I set forth to find applied behavioral therapy for Tyler. If the wait for a screening was long, the wait for treatment was even longer. Every clinic was full. Even the waiting lists were full! I spoke with parents who had been waiting over a year and were still without help. I was told my only hope was to wait for a new clinic to open. I had waited long enough! I became determined to open my own clinic. I took the registered behavioral technician course, devoured every article about autism I could find, joined online forums and got to know people in the autism community.
There is much involved in beginning such an important venture, and in the meantime another new clinic opened locally. Tyler was able to get services and I was able to observe and participate in ABA in action.
The goal of ABA therapy is to modify a child’s behavior by focusing first on the behaviors which are most disruptive to a child’s life. ABA, like motherhood, is a journey. As Tyler read on the plate at the Spaghetti Factory so long ago, it is an “amazing adventure”.
After just six months of ABA therapy, Tyler had made significant progress. Challenges we had struggled with for years, such as potty training were solved. Through guided play and positive reinforcement, Tyler learned new constructive replacement behaviors. And there was an amazing transformation in me as well.
Immediately after his ASD diagnosis, before beginning ABA, I had hoped to “fix” Tyler, to teach him to mask his autistic traits so that his ASD would be unnoticeable. When he was overcome with excitement, for example, I would gently urge him to stop flapping his arms. I desperately wanted Tyler to “fit in”. Yet, when a child was cruel to Tyler, I would remind him of my favorite Dr. Seuss quote, “those who matter don’t mind, and those who mind don’t matter”. I needed to be reminded of that famous quote more than Tyler did.
Once Tyler’s overwhelming challenges were addressed through ABA therapy, I could accept and embrace his less challenging autistic behaviors. Many of Tyler’s personality traits which are attributable to autism are the characteristics I now cherish most. Though his flapping is an immediate indication that he may not be neurotypical, it is also a giveaway that he is genuinely happy. It is as though his joy and excitement is too great to be contained in his little body. His hyper focus on various interests throughout the years, has taught me more than I ever thought I would know about The Beatles, The Beach Boys and The Monkees. His personality that the neurologist described as “quirky” makes him unique. I am truly blessed to be his mother. I am lucky to get to see the world through his eyes, to experience his unique perspectives and to be on this amazing adventure with him.
After experiencing the life changing effects of ABA firsthand, my determination to open a behavioral learning center became a passion. I opened Skipping Stones to get Tyler, and children like Tyler, the fundamental help they need and deserve.